Social Media Makes Rare Diseases Visible
We Are Thrilled to Announce our Data on Rednote!
In order to increase public awareness of the diseases (Tourette Syndrome and rare diseases), we established a Rare not Alone organization account on Rednote (mainly popular in China). On this platform, we would send interviews, videos, and posts about the diseases , hoping to let more people become aware of these diseases and give more understanding, support, and care to people with these diseases.
Rednote
Our Rednote ID: 1110105764
or Scan this QR code to find us on Rednote
Look at the Video we Posted on Social Media
Tourette Syndrome
🤷Look at the video of the introduction of Tourette Syndrome by Raymond Shi💬
Autism Spectrum Disorder
🧩This video is explanation of Autism Spectrum Disorder by Raymond Shi, mainly including its symptoms and treatments💙
Angelman Syndrome
👼Raymond Shi from Rare not Alone organization explains what is Angelman Syndrome⚡️
Amyotrophic Lateral Sclerosis
🧑🦽XIAOXUAN YANG explains what is Amytrophic Lateral Sclerosis🧬
Spinal Muscular Atrophy
🧑🦽This video is to explain what is Spinal Muscular Atrophy (SMA) 💪
Autism Spectrum Disorder
🧩This video is about the explanation of Autism Spectrum Disorder, mainly including its symptoms and impact on children💙