Social Media Makes Rare Diseases Visible
We Are Thrilled to Announce our Data on Rednote within 30 days!
Followers 2000+
Total Views 160,000+
Total Impressions 720,000+
In order to increase public awareness to the diseases we focus on (Tourette, Relative Rare Diseases, and Rare diseases), we established two rare not alone organization account on Rednote (mainly popular in China) and Instagram (popular in North American and Europe). On these platforms, we would send videos and posts about the diseases we focus on, hoping to let more people become aware of these diseases and give more understandings, supports, and cares to people with these diseases.
Rednote
Our Rednote ID: 1110105764
or Scan this QR code to find us on Rednote
Click here to find us on Instagram
or Scan this QR code to find us on Instagram
Look at the Video we Posted on Social Media
Tourette Syndrome
🤷Look at the video of the introduction of Tourette Syndrome by Raymond Shi💬
Autism Spectrum Disorder
🧩This video is explanation of Autism Spectrum Disorder by Raymond Shi, mainly including its symptoms and treatments💙
Autism Spectrum Disorder
🧩This video is about the explanation of Autism Spectrum Disorder by Yihan Hu, mainly including its symptoms and impact on children💙
Angelman Syndrome
👼Raymond Shi from Rare not Alone organization explains what is Angelman Syndrome⚡️
Amyotrophic Lateral Sclerosis
🧑🦽The vice president or Rare not Alone organization XIAOXUAN YANG explains what is Amytrophic Lateral Sclerosis🧬
Spinal Muscular Atrophy
🧑🦽Ruiyan He, the vice president of Rare not Alone organization, designs this video to explain what is Spinal Muscular Atrophy💪