Raymond Shi

Raymond is an undergraduate at Vanderbilt University with academic interests spanning biology, chemistry, medicine, statistics, and psychology. As the founder and leader of Rare not Alone, Raymond leads the organization’s educational initiatives, public exhibitions, volunteer programs, and digital platform development, working to make rare diseases better understood and ensure that patients and families feel seen and supported.

What Raymond wants to say

“It's easy for many people to overlook and misunderstand Tourette Syndrome and symptoms of rare diseases. This overlooking causes sufferings of many children with these diseases due to late treatments and misdiagnosis. I want to support these children and reduce their sufferings. How? Increasing public awareness, encouraging more people to practically care these children, and resorting better treatments can lead to more accurate diagnosis and treatments and ultimately reduce their sufferings. That's the Mission of Rare not Organization as well as mine."